Angelman Syndrome

Living with Angelman syndrome

For people living with Angelman syndrome and their caretakers, debilitating symptoms such as seizures and issues with mobility, behavior and cognition can be difficult to manage. It can be a challenge to communicate even the most basic needs. Between managing sleep deprivation at night and overstimulation during the day, Angelman syndrome takes a toll on those with the condition and their families.

Experience a day in the life of a family living with Angelman syndrome with Quincy, Ryder and Sydney.

Life with Angelman Syndrome: Small Victories, Big Impact

Small victories in improvements to motor skills can have a big impact for people living with Angelman syndrome and their families.

Life with Angelman Syndrome: The Impact of Sleep Deprivation

Angelman syndrome can cause severe sleep disturbance, not only for the person affected, but also for the rest of the family.

Life with Angelman Syndrome: Maintaining Focus & Concentration

For people living with Angelman syndrome, hyperactivity and anxiety are very common. Extreme emotions and over-excitement can be a struggle to manage.

Patient Stories

Read these stories of families living with Angelman syndrome to learn more about the condition.

Rhys

“Rhys loves everyone unconditionally. He can make anyone smile, especially on the days you need it most. He has a heart of gold.”

– Rob & Melissa, Rhys’ parents

Theo

“Sometimes, lost sleep is the hardest part of raising a child with Angelman syndrome, and it’s not easy for our kids either.”

– Christina, Theo’s mother

Weston

“Small victories – like taking an extra few steps or being able to point – could have a major impact on how Weston interacts with his world.”

– Lori and Mike, Weston’s parents