Living with Angelman syndrome
For people living with Angelman syndrome and their caretakers, debilitating symptoms such as seizures and issues with mobility, behavior and cognition can be difficult to manage. It can be a challenge to communicate even the most basic needs. Between managing sleep deprivation at night and overstimulation during the day, Angelman syndrome takes a toll on those with the condition and their families.
Experience a day in the life of a family living with Angelman syndrome with Quincy, Ryder and Sydney.
Life with Angelman Syndrome: Coming to Terms with the Diagnosis
An Angelman syndrome diagnosis can be extremely impactful on a family, changing their future. Hear how one family is embracing each day with hope thanks to help from their friends and local community.
Life with Angelman Syndrome: Challenging Conversations
Motor and communication skills are often severely impacted by Angelman syndrome, making it challenging to communicate even the most basic needs.
Life with Angelman Syndrome: Maintaining Hope
Between managing sleep deprivation at night and overstimulation during the day, Angelman syndrome takes toll on those with the condition and their families.
Read these stories of families living with Angelman syndrome to learn more about the condition.
“Rhys loves everyone unconditionally. He can make anyone smile, especially on the days you need it most. He has a heart of gold.”
– Rob & Melissa, Rhys’ parents
“We pine for improvements, however small, that would help our children in their ability to communicate and to thrive.”
– Christina, Theo’s mother
“Small victories – like taking an extra few steps or being able to point – could have a major impact on how Weston interacts with his world.”
– Lori and Mike, Weston’s parents